In Parliament

Members Statement - Prader-Willi Syndrome


Monday, 27 May 2019.

Mr NEWBURY (Brighton) (14:43):

I recently met a beautiful young girl called Chloe.

Chloe has a rare genetic disorder called Prader-Willi syndrome. It is a randomly occurring disorder where some of the genes in chromosome 15 are inactive or missing. The syndrome affects development and growth.

I recently joined five-year-old Chloe and her family in Hampton for an awareness walk, Finding 15. Hundreds of people from my community joined us.

On the first weekend of May inaugural Finding 15 walks were held across five locations in Australia—an incredible coming together of people across the community.

Chloe, you are a very brave girl and I am so proud to know you.